Support and Advocacy Organizations (thanks to the many existing links within the ACS and AACR sites)
American Cancer Society
The American Cancer Society combines an unyielding passion with nearly a century of experience to save lives and end suffering from cancer. As a global grassroots force of more than three million volunteers, we fight for every birthday threatened by every cancer in every community. We save lives by helping people stay well by preventing cancer or detecting it early helping people get well by being there for them during and after a cancer diagnosis by finding cures through investment in groundbreaking discovery and by fighting back by rallying lawmakers to pass laws to defeat cancer and by rallying communities worldwide to join the fight. Get involved: http://www.cancer.org/docroot/emp/emp_2_volunteers.asp
African American Women in Touch
Memorial Hospital & Health System, 615 North Michigan St., South Bend, IN 46601
African American Women in Touch operates out of the Memorial Hospital & Health System in South Bend, Ind. The organization educates African-American women about breast cancer, provides information on early detection, and offers free mammograms to women who cannot afford them. It also provides a network of support through its monthly support meetings and annual health care symposium. African American Women in Touch provides transportation to treatment, wigs and free prostheses to women facing breast cancer.
The money we raise will provide women and men the breast cancer screening, support and treatment they need regardless of their ability to pay, and so that leading-edge research teams across the country can be powered by the funds they need to fuel their quest for a cure - all because of you! Are you In It To End It? Take the first step today. Get involved:
Black Women’s Health Imperative
1420 K St., N.W., Suite 1000, Washington, DC 20005
The Black Women's Health Imperative is a health education, research, advocacy and leadership-development institution. Its website provides information, educational materials, news and other resources related to cancer and other health issues facing black women.
Breast Cancer Action
55 New Montgomery St., Suite 323, San Francisco, CA 94105
Breast Cancer Action (BCA) is a grassroots organization of breast cancer survivors and their supporters that educates people about breast cancer issues. The group's website has downloadable flyers and fact sheets on breast cancer issues. BCA also provides a booklet for newly diagnosed breast cancer patients.
The Breast Cancer Fund
1388 Sutter St., Suite 400, San Francisco, CA 94109
The Breast Cancer Fund works to identify environmental and other preventable contributors to breast cancer and it advocates for their elimination. The fund, which also educates the public about cancer prevention, produces a monthly e-newsletter and fact sheets, which are all available on its website.
Breast Cancer Network of Strength
1-800-221-2141 (English) 1-800-986-9505 (Spanish)
135 South LaSalle St., Suite 2000Chicago, IL 60607-3908
Breast Cancer Network of Strength (previously known as Y-ME National Breast Cancer Organization) provides culturally sensitive breast cancer services and resources for individuals who would like to know more about the disease. The organization’s website hosts breast cancer message boards on which participants can discuss a wide variety of topics, such as survivorship issues or advice for newly diagnosed patients. The group offers a 24-hour breast cancer hotline with interpreters in 150 languages. Callers to the hotline are matched to a survivor, patient or supporter who has had a similar experience with breast cancer. Breast Cancer Network of Strength has affiliate chapters throughout the country. It also operates a wig and breast prosthesis bank.
The Breast Cancer Research Foundation
1-866-FIND A CURE (1-866-346-3228)
60 East 56th St., Eighth Floor New York, NY 10022
The Breast Cancer Research Foundation is dedicated to preventing and curing breast cancer by raising funds for innovative research and increasing awareness of good breast health. The foundation has a monthly e-mail newsletter and hosts an annual conference.
275 Seventh Ave.New York, NY 10001
CancerCare provides counseling, online and telephone support, educational information and financial assistance to patients, families and caregivers who are dealing with all types of cancer. The organization offers specialized programs that focus on the unique needs of caregivers, children and young adults, patients with rare or advanced cancers, and individuals facing end-of-life issues. CancerCare’s services are available in English and Spanish. Programs are provided by trained oncology social workers and are completely free of charge.
Cancer Hope Network
2 North Road, Suite AChester, NJ 07930
The Cancer Hope Network provides free and confidential one-on-one support to cancer patients and their families. All of its support volunteers are specially trained cancer survivors.
Cancer Really Sucks
P.O. Box 11264, Cedar Rapids, IA 52410-1264
Cancer Really Sucks is designed to help teenagers who have a loved one with cancer. The website hosts forums and monthly chat rooms in which teens can connect with other teens to discuss cancer-related issues. The website also offers advice from mental health professionals and social workers about how to cope with a loved one's cancer.
Cancer Wellness Center
215 Revere Drive, Northbrook, IL 60062
The Cancer Wellness Center provides support groups for people living with cancer in and around Northbrook, Ill., as well as individual support services and services for couples and families. The center also hosts a variety of stress-reducing workshops including Qigong, meditation and yoga classes, and spirituality discussion groups.
The Center for Patient Partnerships
975 Bascom Mall, Suite 4311, Madison, WI 53706
The Center for Patient Partnerships is an advocacy and education program that advocates for the needs and rights of people facing life-threatening diseases, including cancer, all around the world. The Center for Patient Partnerships helps patients understand their diagnoses and treatment options, deal with illness-related work issues, and handle insurance issues.
Facing Our Risk of Cancer Empowered
16057 Tampa Palms Blvd. West PMB #373 Tampa, FL 33647
Facing Our Risk of Cancer Empowered (FORCE) provides information for women who have a high risk of developing breast or ovarian cancer. The organization offers information about hereditary cancers, risk management, and the medical and lifestyle options that are available to high-risk women. FORCE has a toll-free helpline, a message board and a chat room through which women can discuss issues that face high-risk individuals.
Family Caregiver Alliance
180 Montgomery St., Suite 1100, San Francisco, CA 94104
The Family Caregiver Alliance (FCA), which provides information and support to caregivers, publishes factsheets about caregiving issues in English, Spanish and Chinese. The organization also offers advice about how to handle caregiving responsibilities and the health impacts that stress can have on caregivers, and it also provides online support groups.
Friends of Cancer Research
2231 Crystal Dr. Suite #200, Arlington, VA 22202
Friends of Cancer Research is a nonprofit organization that aims to accelerate progress toward better tools for the prevention, detection and treatment of cancers. The organization raises awareness about cancer and educates the public about cancer research. It also publishes a monthly newsletter.
Gilda's Club Worldwide
Gilda's Club Worldwide, 322 Eighth Ave., Suite 1402, New York, NY 10001
Gilda's Club Worldwide is a national organization with affiliate branches in cities across the country. Gilda's Club provides lectures, workshops and support groups for men, women and children whose lives have been touched by cancer. Gilda's Club also has a specially designed program, called Noogieland, for children dealing with cancer.
Gynecologic Cancer Foundation
230 West Monroe, Suite 2528, Chicago, IL 60606
The Gynecologic Cancer Foundation (GCF) is a national organization that works to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment. The foundation publishes brochures and educational materials about gynecologic cancer. The GCF also supports research and training related to gynecologic cancers. The foundation’s Women’s Cancer Network offers information about risk assessment and clinical trials and has a database of doctors who treat gynecologic cancers. The GCF also offers courses and telephone educational workshops for survivors of a variety of gynecologic cancers.
Inflammatory Breast Cancer Research Foundation
The Inflammatory Breast Cancer Research Foundation educates people about inflammatory breast cancer (IBC). Its website offers e-mail discussion lists and other educational materials. The organization also raises funds for inflammatory breast cancer research and collects tumor samples for its IBC BioBank. The website of the Inflammatory Breast Cancer Research Foundation offers e-mail discussion lists and other educational materials.
Intercultural Cancer Council
Baylor College of Medicine, Suite 1025, 1709 Dryden St., Suite 1025, Houston, TX 77030
The Intercultural Cancer Council (ICC) is an advocacy group devoted to promoting policies, programs, partnerships and research aimed at eliminating the unequal burden of cancer on racial and ethnic minorities and medically underserved populations in the United States and its territories. It provides cancer fact sheets on its website and sponsors a biennial symposium to promote discussions of cancer in minorities and medically underserved communities.
Linda Creed Breast Cancer Foundation
260 South Broad Street, 18th Floor, Philadelphia, PA 19102
The Linda Creed Breast Cancer Foundation offers financial assistance to women in the Philadelphia region who are undergoing breast cancer treatment. The foundation provides free and low-cost mammograms to uninsured and under-insured women. The Linda Creed Breast Cancer Foundation also offers women and their families informational materials and access to cancer detection and treatment resources.The organization’s Rainbow Circle addresses the needs of lesbian, bisexual and transgender breast cancer survivors. The Linda Creed Breast Cancer Foundation also runs Safe Circle, a program for African-American women.
Living Beyond Breast Cancer
354 West Lancaster Ave., Suite 224, Haverford, PA 19041
Living Beyond Breast Cancer offers educational programs and services to women and families affected by breast cancer. Its programs include a toll-free Survivors' Helpline (1-888-753-5222), a free quarterly newsletter, publications for African-American and Latina women, and networking programs for young survivors and women of color.
125 Second Ave., Room 13, New York, NY 10003
Malecare is an organization devoted to the health needs of men. The organization provides information on prostate cancer, testicular cancer and male breast cancer. Malecare also provides information on the sexual side effects of cancer treatment. It also hosts support groups throughout the nation. The organization facilitates cancer support groups for gay men and also reaches out to lesbian, gay, bisexual and transgender (LGBT) people through its LGBT cancer project. Information on the Malecare website is available in a variety of languages, including Spanish, French, Italian and Russian.
Mautner Project, the National Lesbian Health Organization
1707 L St., N.W., Suite 230, Washington, DC 20036
The Mautner Project is a support and advocacy organization dedicated to improving the health of lesbians and their families, especially those with cancer and other life-threatening diseases. The Mautner Project aims to educate lesbians about their health and to educate health care providers about their lesbian patients. Among its many activities, the Mautner Project coordinates in-person support groups and offers phone support services.
Mothers and Daughters
Mothers and Daughters is an organization for the mothers of breast cancer patients and survivors. The organization provides support for mothers and matches them with other women who have daughters with breast cancer. Mothers and Daughters also provides support for women diagnosed with the disease. The group publishes informational booklets for mothers and for women who are diagnosed with breast cancer.
National Asian Women’s Health Organization
4900 Hopyard Road, Suite 100, Pleasanton, CA 94588
The National Asian Women’s Health Organization (NAWHO) aims to raise awareness about the health needs of Asian-American women. The organization’s mission covers a wide range of health issues including breast and cervical cancer. NAWHO began the Asian American Women’s Breast and Cervical Cancer Project in 1995 as a way to address the needs of Asian-American women living with breast and cervical cancers.
National Breast Cancer Coalition
1101 17th St., N.W., Suite 1300, Washington, DC 20036
The National Breast Cancer Coalition (NBCC) aims to eradicate breast cancer by focusing government, research institutions and consumer advocates on breast cancer. The coalition informs, trains and directs patients and others in effective advocacy efforts. The NBCC's goals include promoting breast cancer research improving access to high-quality breast cancer screening, diagnosis, treatment and care and increasing the involvement and influence of breast cancer survivors and activists in the decision-making processes that impact the disease. The NBCC website provides a list of fact sheets, analyses and position papers related to breast cancer.
National Lung Cancer Partnership
222 North Midvale Blvd., Suite 6, Madison, WI 53705
The National Lung Cancer Partnership works to increase awareness about lung cancer and raise funds for treatment. The organization provides information for lung cancer patients and maintains a calendar of lung cancer events across the country.
Nueva Vida Inc.
2000 P St., N.W., Suite 620, Washington, DC 20036
Nueva Vida is made up of Latina breast cancer survivors and Latino health care professionals who are committed to providing culturally sensitive support services for Latinas living with cancer in the Washington metropolitan area. Nueva Vida offers support, education and resources in both Spanish and English.
Pennsylvania Breast Cancer Coalition
Trout Run Business Center, 344 North Reading Road Ephrata, PA 17522
The Pennsylvania Breast Cancer Coalition provides support to women in Pennsylvania who are impacted by breast cancer. The organization hosts an annual conference and offers patients the opportunity to interact with other survivors as well as medical professionals and patient advocates. The coalition operates support groups throughout the state.
Research Advocacy Network
309 E. Rand Road, Suite 175, Arlington Heights, IL 60004
The Research Advocacy Network (RAN) focuses on education, support and connecting patient advocates with the research community to improve patient care. It develops materials to advance patient-focused research and works to equip advocates for more effective advocacy. The organization hopes to collapse the amount of time it takes for research results to reach community practice.
SHARE: Self-Help for Women With Breast or Ovarian Cancer
1501 Broadway, Suite 704A, New York, NY 10036
SHARE offers support to women with breast or ovarian cancer in the New York metropolitan area. Cancer survivors lead SHARE's support groups and staff its hotlines. There are separate hotlines for breast, ovarian and Latina patients programs for families and friends affected by breast and ovarian cancer and a variety of support groups and other programs. SHARE offers educational programs on topics such as lymphedema, clinical trials, bone health, hormonal treatments, access to medical care and advocacy.
1086 Teaneck Road, Suite 3A, Teaneck, NJ 07666
Sharsheret is a national organization of cancer survivors that provides culturally sensitive support and information to Jewish women facing breast cancer. Sharsheret also offers specialized information for the friends and families of breast cancer patients and for women who have a high risk of developing the disease.
Sisters Network Inc.
2922 Rosedale St., Houston, TX, 77004
Sisters Network increases awareness about the impact of breast cancer on the African-American community. The organization provides African-American women with educational materials about breast cancer risk, symptoms and treatment. Sisters Network maintains support-group chapters in about three dozen states.
Susan G. Komen for the Cure
1-877-GO KOMEN (1-877-465-6636)
5005 LBJ Freeway, Suite 250, Dallas, TX 75244
Susan G. Komen for the Cure (previously known as the Susan G. Komen Breast Cancer Foundation) funds research grants and supports breast cancer education, screening and treatment projects in communities around the world through an extensive network of United States and international affiliates. The organization also provides information about breast health and breast cancer, treatment options and community support groups through a national toll-free helpline (1-877-GO KOMEN or 1-877-465-6636) and distributes a variety of educational materials to those affected by breast cancer. Helpline support is available in Spanish.
Virginia Breast Cancer Foundation
1-800-345-VBCF (1-800-345-8223) (toll free)
5004 Monument Avenue, Suite 102, Richmond, VA 23230
The Virginia Breast Cancer Foundation (VBCF) is a grassroots organization committed to the eradication of breast cancer through education and advocacy. The VBCF holds support group meetings and maintains a calendar of breast cancer events in Virginia. It also provides a packet of information for newly diagnosed women.
The Wellness Community
919 18th St., N.W., Suite 54, Washington, DC 20006
The Wellness Community is a nationwide organization with more than two dozen local chapters. It provides online support groups in English and Spanish and has an online resource guide with information about various types of cancer, clinical trials, and advice on managing treatment side effects.
Young Survival Coalition
61 Broadway, Suite 2235, New York, NY 10006
The Young Survival Coalition (YSC) is dedicated to the concerns and issues that are unique to young women and breast cancer. The YSC has an online bulletin board that young survivors can use to communicate with one another and it publishes informational brochures and a quarterly newsletter. The organization also has affiliate branches that host meetings around the country. In addition to educational and support services for survivors, the YSC works to educate community and government officials about the reality of breast cancer diagnosis in young women.